Bardet Biedl Syndrome Foundation

Connecting families and sharing information on research, treatment, and therapies for Bardet Biedl Syndrome.

Donate to the BBS Foundation

Donations to the Bardet-Biedl Syndrome Foundation will support research into treatment and care for people affected by BBS as well as education and outreach to families, physicians, and educators. Our first major project is the launch of a clinical registry for BBS, a vital foundation for accelerating the pace of BBS research.

Click the button above to make your donation.  Thank you.