Bardet Biedl Syndrome Foundation

Connecting families and sharing information on research, treatment, and therapies for Bardet Biedl Syndrome.

For this year’s conference we’re heading back to Marshfield, Wisconsin, home of the Clinical Registry Investigating BBS (CRIBBS) and the BBS Center of Excellence at Marshfield Clinic.

As always, our conference will be a wonderful time to connect with and learn from other BBS families, hear from leading experts about cutting edge research on BBS, and ask questions of doctors and specialists who have experience treating lots of people with BBS. We'll also have the chance to hear directly from leaders of Rhythm Pharmaceuticals about the first trial of a treatment for BBS-related hunger management and weight control. And we'll have plenty of sessions for BBS families to talk to each other.

This year we’re also having a full day to get to know other BBS families: The Family Day on the Farm, on Thursday, June 25th. Main conference sessions will be on June 26th and 27th.


See 2016 conference agenda

See 2018 conference agenda