Bardet Biedl Syndrome Foundation

Connecting families and sharing information on research, treatment, and therapies for Bardet Biedl Syndrome.

2016 BBSFA Conference

June 24-25, 2016
Duke University, Durham, NC
Closest Airport: Raleigh/Durham International Airport (RDU) 
A shuttle from the airport to the hotel and return will be available for a nominal fee on Thursday, Saturday evening and Sunday morning

For the tentative conference agenda, click here.

To pay online: Please add registration info for each person attending below, and then Checkout
Paying by check? Please click here.

Adult: Register for 2020 BBSFA Conference
$80.00

The first adult registration is $80.

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Additional Adult: Register for 2020 BBSFA Conference
$60.00

Registrations after the first adult are $60 for each adult.

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Youth: Register for 2020 BBSFA Conference
$30.00

Youth (under age 18) registrations are $30 per person. The registration fee covers snacks, lunches, the Family Day on the Farm and a conference t-shirt.

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Other Ticket: Banquet Only
$25.00
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Registration includes:

  • Attendance at all sessions, Friday + Saturday
  • Lunch, Friday + Saturday
  • The Association Banquet, Friday night
    (nominations for 2016-2018 board positions will take place at the banquet) 
  • A Family Association Membership (and 1 vote in Association business matters) is included in the price for the first adult ($100). 
  • A BBSFA T-shirt

AIRPORT: The nearest airport is Raleigh Durham International (RDU), approximately 15 miles from the hotel and conference venue. A shuttle from the airport to the hotel and return will be available for a nominal fee on Thursday, Saturday evening and Sunday morning.

HOTEL ACCOMMODATIONS:  We have arranged for a group discount at the Courtyard by Marriott in Durham and will arrange transportation from the hotel to the conference and banquet. The room rate is $109 per night, ask for the BBSFA Conference. Additional days before and after the conference are available at that rate. Continental breakfast is included in the above rate.

PARKING:  Parking at the hotel and the conference venue is free. A shuttle between the hotel and the conference site will be available.

CANCELLATION AND REFUNDS:  Requests for cancellation and refunds will be accepted until May 15, 2016. 
Note:  A $20 non-refundable processing fee will be charged.  Please allow approximately 3 to 5 weeks for processing.  No refunds will be possible after May 15, 2016.

Pay online via credit card with the registration link above on this page


Please direct all registration inquiries to: Mary Morris