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Bardet Biedl Syndrome Foundation

Connecting families and sharing information on research, treatment, and therapies for Bardet Biedl Syndrome.

LMBBSA Conference 2012

Today I’ll be posting updates from the 2012 LMBBSA Family conference being held at Duke University. Dr. Nico Katsanis and the Center for Human Disease Modeling are our gracious hosts.

Presentations from Dr. Haws (Nephrologist), Dr. Peirce (Pediatric Ophthalmologist) and Dr. Katsanis are coming up today.

You can follow closer to “live” updates on Twitter via @bardetbiedl